Poster presentation | Supporting adults living with MPS diseases

Members of the MPS Society were invited to take part in an online survey investigating their views about living with MPS disease. The study aimed to understand the challenges encountered by adults living with MPS disease and how best to support them with their condition.


We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2020 Society for Mucopolysaccharide Diseases