Young adult webinars by Fabry International Network

Updated: Aug 17, 2020

Fabry International Network is very committed to training the next generation of patient advocates and also providing a platform for young adults to get in contact with each other, to share their experiences and learn from each other.

They had hoped to invite young adults to a face-to-face event this year but due to the global pandemic, they have instead organised a series of webinars in September, October and possibly November.

They are planning two or three webinars where young adults (Fabry patients from 18 years old to 35 years old) are invited to address topics such as personal and professional development, using your own skillset to improve your life, mental health, challenges and best practices, how to co-operate with the pharmaceutical industry, and more.


Saturday September 12th – 1pm- 3pm CEST

Saturday October 3rd – 1pm- 3pm CEST

Saturday November 7th - 1pm- 3pm CEST


A series of webinars where we address important topics which consist of your personal and professional challenges, as well as improving and using your skillset for these challenges. We know you are more than just Fabry and want to focus on everything that you are.


Fabry patients from 18 years old up to the age of 35.

What's in it for you?

Connect with peers from all over the world, learn from them and share your story. Learn from experts how you can improve your skills in all areas of your life.

How to enroll

Download and complete the registration form before 19 August 2020.

Download the registration form
Download PDF • 16.92MB

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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