Respite care

Hospice care seeks to improve the quality of life and wellbeing of children and young adults with life liming diseases, helping them live life as fully as they can for the precious time they have left. If your child needs hospice care you can contact our support team at any time for advice and help with this.  

 

Here are also links to various hospices across the UK and please let our support team know if you have any questions:

Useful links

 

For advocacy

For adults and young people

For parent support

Helpline

 

Our helpline is open 9-5pm

Monday-Friday:

0345 389 9901

Out of hours support line open

5pm-10pm Monday-Friday and weekends: 07712 653 258 or

Contact us

Complete the form below to send a message to the advocacy team

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2020 Society for Mucopolysaccharide Diseases