Help make every moment count for families affected by MPS, Fabry or a related lysosomal disease by setting up a regular gift. When life is turned upside down our Support Workers are there.
About our support
Our Support team provides direct 1-2-1 support to around 1,100 of our members every year. Support from the MPS Society is available from the point of diagnosis through to bereavement support. New members are allocated a specific Support Worker according to their disease, who will always be their point of contact.
Individuals and families living with MPS, Fabry and related lysosomal diseases receive the support they need to help them to experience the best possible quality of life.
Every year we provide over 300 in-depth cases of support, for example with Education, Health and Care (EHC) Plans and social care issues.
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Meet Sally, one of our Support officers
‘’Being part of a service that supports members and their families to achieve their needs and hopefully take a share of the burden in doing so is a great feeling. When I get a call or email telling me their issue has moved forward as a result of our support, it makes me realise that even when it is hard and complicated, it ultimately is worth it and we move on to fight another day together!"
This year, we celebrate 40 years of the MPS Society and are asking for 40 supporters to set up a regular gift of just £8 a month (£2 a week) or anything you are able to give to help fund a Support Worker.
If you already donate monthly to us and have changed your bank details, or want to change your regular gift amount, please contact the fundraising team. If you give by Standing Order please contact your bank.
Regular gifts by direct debit give us a predictable income so the MPS Society can commit to helping more people across the UK. It means we can plan for long term solutions and invest in bigger projects.