Advice, information and support through transition from child to adult services. The below sections have transition processes and our support and advocacy team can support you through these stages. They can help by answering questions about the process on your behalf and support you with the information and planning of meeting with your multi-disciplinary team. Our support and advocacy officers can raise any queries or concerns regarding provision in any of the areas should you feel the need to do so. 

Contact us

9-5pm Monday-Friday: 0345 389 9901

Out of hours support line open 5pm-10pm Monday-Friday and weekends:

07712 653 258

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society

MPS House, Repton Place

White Lion Road, Amersham

Buckinghamshire, HP7 9LP

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2019 Society for Mucopolysaccharide Diseases