Transition

Advice, information and support through transition from child to adult services. The below sections have transition processes and our support and advocacy team can support you through these stages. They can help by answering questions about the process on your behalf and support you with the information and planning of meeting with your multi-disciplinary team. Our support and advocacy officers can raise any queries or concerns regarding provision in any of the areas should you feel the need to do so. 

Health and social care


Support for young people moving from children’s to adult’s services, in terms of education and employment, health and well-being, development and well-being. A good transition should build on the young person’s strengths and wherever possible work with the young person themselves to plan for how they can meet their aspirations in life. The young person and their family are equipped with realistic expectations and knowledge to ensure confidence in their care and support needs are being met in the future. For many young people a transition plan will be part of their Education, Health and Care plan. Transition to adulthood will involve Education and employment, Health and well-being, Independent living and housing options and being a part of the community including having friends and relationships.




Health Transition


Generally, young people transition to adult health services between the ages of 16 to 18 years. Although there are exceptions to the rule in some circumstances and transition should have an individualised approach.

From the age of 14 young people can be introduced to the adult clinical team; a lead worker should be allocated as a main point of contact and to coordinate the transition. This could be your clinical nurse specialist or the consultant. They will help to develop a transition plan with you; this will outline key steps and processes in the transition. Most hospitals will offer transitions clinics; this is an opportunity to see the paediatric consult and adult consultant together so as to help facilitate an effective hand over of information.

After transition the young person has more autonomy in managing their healthcare (if they have capacity to do so). This means that they will have a greater say in how their condition is managed and may attend appointments on their own. Parent and family members still play an important role in supporting a young person’s independence in health care; this may include prompts and reminders about appointments, logistical and practical support and emotional support, and, if the young person agrees, accompany them to the consultation.




Education


Throughout a child’s educational career there will be a number of transitions to consider such as moving from one year group to the next, from primary to secondary school and beyond.

The key to a successful transition is good preparation, sharing of information and effective communication. For those young people with disabilities, an Education, Health and Care plan plays an important part in transitions. These are reviewed yearly or at times of change. It is important for these plans to be kept up to date and for the full extent of needs and required support to be quantified and documented. The SEN code of practice is a useful reference tool: Special educational needs and disability code of practice: 0 to 25 years
In respect of preparation for adulthood the code of practice states that transition should be discussed from year 9 of education and should include discussions about education and employment, independence, health and social inclusion. This process should identify the young person’s aspirations and the actions and support needed to succeed.





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Out of hours support line open 5pm-10pm Monday-Friday and weekends:

07712 653 258

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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