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About us

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The MPS Society provides support to families affected by one of 25 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.

About us

Founded in 1982, we are the only registered charity in the UK which focusses on MPS (Mucopolysaccharide), Fabry and related lysosomal diseases. These diseases cause a range of progressive disabilities.

Who we are

Based in Buckinghamshire, we are a registered charity which is governed by an independent board of trustees. Our Chief Executive Bob Stevens heads up our Fundraising, Communications, Advocacy and Commercial teams.

Our supporters

As a small charity, we achieve a huge amount, but we can only do this with the continued support of wonderful people like you.

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