The MPS Society provides support to families affected by one of 25 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.
Founded in 1982, we are the only registered charity in the UK which focusses on MPS (Mucopolysaccharide), Fabry and related disorders. These disorders cause a range of progressive disabilities.
Based in Buckinghamshire, we are a registered charity which is governed by an independent board of trustees. Our Chief Executive Bob Stevens heads up our Fundraising, Communications, Advocacy and Commercial teams.