Winchester syndrome

What is Winchester syndrome?

 

Winchester syndrome is a rare inherited disease characterised by a loss of bone tissue (osteolysis), particularly in the hands and feet. Although it is not one of the mucopolysaccharidosis it has many features in common with these diseases. The disease was first described in 1969.

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Our support line is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours line: open 5pm-10pm Monday-Friday and weekends:

07712 653 258 

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society

MPS House, Repton Place

White Lion Road, Amersham

Buckinghamshire, HP7 9LP

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