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The MPS Society provides support to families affected by one of 25 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.

About us

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases. These diseases are rare or ultra-rare and are both progressive and life limiting. Through our highly dedicated team we offer support throughout the UK that both informs and empowers the community we serve and that raises awareness of this disease group to a wider audience both nationally and internationally.


We offer flexibility in working hours, free on-site parking, 25 days (pro-rata) paid holiday per year and life insurance cover (subject to the conditions of the scheme)

Current vacancies


Marketing Communications Officer

At the MPS Society we aim to transform the lives of people affected by MPS, Fabry and related diseases through specialist knowledge, support and advocacy, and research. Our fundraising and communications team make this happen by raising income through community fundraising and corporate giving and securing funds from the pharmaceutical industry to fund the vital work of our support team, as well as raising awareness and sharing up-to-date information about these ultra-rare diseases.

As the Marketing Communications Officer you will develop and plan audience-driven communications across our channels including social media, email marketing and our website, sharing our members’ stories and raising awareness of our cause. Working with the rest of the communications team you will provide communications support across the MPS Society and Rare Disease Research Partners (a not for profit subsidiary of the MPS Society).

Please note that the successful candidate must be eligible to work in the UK and a DBS check will be required.

How to apply: If you would like to speak to someone about this role please call 0345 389 9901. To apply, please click on the 'Apply now' button and forward your up-to-date CV.

Closing date: We have an initial closing date of 20 September 2021. However, interviews will be held following receipt and assessment of suitable applications. We will only respond to applicants shortlisted to interview therefore if you have not heard from us within 4 weeks of your application, we thank you for taking the time to apply and your interest in working for us.

Our privacy notice for job applicants

In accordance with the General Data Protection Regulation (GDPR), the MPS Society have implemented this privacy notice to inform you, as prospective employees of our Company, of the types of data we process about you. We also include within this notice the reasons for processing your data, the lawful basis that permits us to process it, how long we keep your data for and your rights regarding your data. View our privacy notice.