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The MPS Society provides support to families affected by one of 25 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.

About us

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases. These diseases are rare or ultra-rare and are both progressive and life limiting. Through our highly dedicated team we offer support throughout the UK that both informs and empowers the community we serve and that raises awareness of this disease group to a wider audience both nationally and internationally.


We offer flexibility in working hours, free on-site parking, 25 days (pro-rata) paid holiday per year and life insurance cover (subject to the conditions of the scheme)

Current vacancies


Head of Project Delivery

As Head of Project Delivery you will be responsible for developing further our current patient focussed services/activities and developing future support programmes for our community.


This is a new and exciting role suitable for someone who is passionate about transforming individual lives and that of their families. You will need to have prior experience of effectively managing projects from research through to budgeting, delivery and beyond.  This role will eventually be supported by a Project Coordinator therefore experience in building and managing a team, preferably within a health and social care field is essential.  You will also require strong organisational and communication skills along with the confidence to build excellent working relationships, produce accurate monitoring/evaluation reports and work in collaboration with a number of key departments within our organisation.

You will work under the guidance of the Senior Head of Patient Services and Clinical Liaisons to ensure that all project requirements, schedules, deadlines and projects are on track.

Initial closing date: 17 January 2021

Communication and Information Manager

The Fundraising and Communications Team are responsible for securing funds from the pharmaceutical industry and raising income through a variety of channels including individual giving, events, community and corporate companies in order to fund the vital work of the charity. They manage all communications for the MPS Society including monthly e-shots, social media, MPS Society publications and produce essential disease information booklets.

This is a fantastic opportunity for someone wanting to develop their career in communications in the charity sector and looking to step up to the next level. Working alongside an inspiring communications and fundraising team, the successful candidate will be highly motivated and organised with a positive approach to their work with excellent communication skills.

Closing date:

Interviews will be held on a rolling basis as suitable applications are received

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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0345 389 9901

Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2021 Society for Mucopolysaccharide Diseases