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Providing support,
funding research,
raising awareness for
Mucopolysaccharide
& related diseases


Welcome to the MPS Society

The Society for Mucopolysaccharide Diseases (the MPS Society) is the only UK charity supporting individuals and families affected by MPS, Fabry and related diseases. These are progressive, life limiting genetic conditions.

First founded in 1982, we have made some outstanding achievements around our key aims: support, research and awareness.

But, there is still so much to do. See how your money helps and how you can get involved in supporting us through fundraising.

 

Latest News

NHS England's Scorecard Denies Access to Treatment for Ultra Rare Diseases - Please sign our petition!

Reinstate the Highly Specialised Services and ultra orphan drug appraisal process for children and adults with ultra rare diseas…

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Scottish Information Day

The MPS Society is pleased to announce that we will be holding a Scottish Information Day on Mucopolysaccharide and related dise…

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Morquio IVA Clinical Trial Update

Morquio IVA Clinical Trial update regarding the transition from clinical trial to commercial treatment in the UK.

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