Latest News

image

Alexion MPSIIIB clinical trial update

Monday 17 July 2017 Alexion MPSIIIB Enzyme Replacement Clinical Trial Dr Suresh Vijay, Clinical Trial Principal Investigator at Birmingham Children’s Hospital has confirmed that it is business as usual until he gets clarification from Alexion on the status of the

Read More
image

Clinical trials for MPSIIIB stopped

14 July 2017 The MPS Society has just been informed by the PI Dr Suresh Vijay from Birmingham Children’s Hospital that the NGLU clinical trials for MPSIIIB have been stopped with immediate effect. At this time neither the CRO, PPD,

Read More
image

Who do you know who has shown courage over adversity?

MPS Society anniversary awards May 2017 is the 35th Anniversary of the founding of the Society for Mucopolysaccharide Diseases. To celebrate this milestone the Board of Trustees will at the MPS Gala Dinner at the conference on Saturday 8 July

Read More
image

Ultragenyx announces investigational therapy for MPS VII accepted for review

Ultragenyx Announces Recombinant Human Beta-Glucuronidase Biologics License Application and Marketing Authorization Application Filed and Accepted for Review; FDA Grants Priority Review Status Ultragenyx Pharmaceutical Inc., a biopharmaceutical company focused on the development of novel products for rare and ultra-rare diseases,

Read More

MPS in numbers

896

individual and families
supported in 2015

25

rare disease supported

3,364,628

£ given research projects
between 1984-2010