Latest News

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Programme for UK MPS conference announced

The line up for the MPS Society national conference on 7-9 July 2017 has been released and is open for bookings. This year we celebrate the 35th anniversary of the Society for Mucopolysaccharide Diseases and throughout the 35 years our MPS weekend

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NICE recommend Migalastat for the treatment of Fabry

NICE recommend Migalastat for the treatment of Fabry disease for individuals over the age of 16 years with an amenable mutation. The National Institute for Health and Care Excellence (NICE) has today released their final decision (FED) to recommend Migalastat

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Winners of the National Draw 2016

Thank you to everyone who bought and sold tickets for the National Draw. The money you raised from the draw will provide support for individuals and families affected by MPS and related diseases as well as funding research into treatments and

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The SMC decision regarding Migalastat (Galafold)

The SMC decision regarding Migalastat (Galafold) was announced on 07 November 2016.  The relevant Detailed Advice Document can be found here.

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MPS in numbers

896

individual and families
supported in 2015

25

rare disease supported

3,364,628

£ given research projects
between 1984-2010