Latest News

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Join us for a fun-filled day at Howletts Zoo

The MPS Society are offering a fun-filled day at Howletts – the Aspinall wild animal park on Friday 7th April 2017. From only £10 for a family of four this will be a great day out at Kent’s original wildlife park. With over

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Press release – NICE condemns to death up to three babies each year in England

NICE the drug decision making body have announced their final decision  today, Wednesday 15 February 2017, not to recommend Kanuma (Sebelipase alfa), the treatment for  individuals suffering from Lysosomal Acid Lipase Deficiency (LAL D). Kanuma was given fast track approval

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FDA permits marketing of first newborn screening system MPS I and Fabry

The U.S. Food and Drug Administration have permitted marketing of the Seeker System for the screening of four, rare Lysosomal Storage Disorders (LSDs) in newborns. The Seeker system is designed to detect Mucopolysaccharidosis Type I (MPS I), Pompe, Gaucher and Fabry.

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Donating with eBay and PayPal – all you need to know

Charity donations with PayPal You can make an instant donation via PayPal to the MPS Society. Just follow these simple steps: 1. Click on this link paypal.com/fundraiser/charity/15394 2. Choose the amount you’d like to give, and whether you’d like to

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MPS in numbers

896

individual and families
supported in 2015

25

rare disease supported

3,364,628

£ given research projects
between 1984-2010