Latest News

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National Draw winners

Thank you to everyone who bought and sold tickets for the National Draw in 2017. The money you raised from the draw will provide support for individuals and families affected by MPS and related diseases as well as funding research into treatments

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MPSIIIB Sanfilippo now included in Orchard Therapeutics and Manchester University collaborative programme

Orchard Therapeutics, a clinical-stage biotechnology company dedicated to transforming the lives of patients with rare disorders through innovative gene therapies, has announced that it has acquired an exclusive license to develop lentivirus-based autologous ex-vivo gene therapy for Sanfilippo syndrome type

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Latest Hunter Outcome Survey report published

Read the Hunter Outcome Survey Annual Report 2016 About HOS Hunter Outcome Survey (HOS) is a large, global, multicentre, longitudinal, observational registry, sponsored by Shire, for patients with mucopolysaccharidosis type II (MPS II; Hunter syndrome). The registry was established in 2005

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Specialist MPS I and MPS II Expert Meetings taking place in April 2018

The MPS Society is excited to be hosting two Expert Meetings dedicated to sharing information on MPSI post HSCT, Hurler Scheie and Scheie and MPSII Hunter. The MPSI and MPSII meetings will run concurrently on 28–29 April 2018 at the

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MPS in numbers

896

individual and families
supported in 2015

25

rare disease supported

3,364,628

£ given research projects
between 1984-2010