WORLDSymposium™ announces Christine Lavery, MBE, Group Chief Executive for the Society for Mucopolysaccharide Diseases, as the recipient for the 2017 Patient Advocate Leader (PAL) Award. Please go to www.WORLDSymposia.org for the full announcement.
The MPS Society is pleased to announce that NICE has given an interim recommendation for Migalastat to be used as a treatment option for Fabry disease in patients over the age of 16 years. This is not the final recommendation
The MPS Society is holding a get together at the Copthorne Hotel, Manchester on Sunday 27th November.This wonderful event is sponsored by William Brake Charitable Trust. This will give individuals and families affected by MPS, Fabry and related diseases, the chance
Lapland UK is a unique, award winning theatrical event that recreates Father Christmas’ arctic homeland for one month only each winter. As guests of Father Christmas you will be given special permission to enter the secret world of the
individual and families
supported in 2015
rare disease supported
£ given research projects