Latest News

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Tickets for the national draw on sale now!

It’s that time of the year again where you can stand a chance of winning magnificent prizes in The MPS Society Annual National Draw! Top Prize Fabulous 3 x night stay for 2 including breakfast, in a 1 bedroom apartment

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New biomarker found for MPS diseases

Abnormal polyamine metabolism is unique to the neuropathic forms of MPS Potential for biomarker development and insight into pathogenesis A newly discovered biomarker associated with a rare metabolic disorder may facilitate better diagnosis and identification of new drugs for clinical

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BBC Three are looking for extraordinary children

If you are a parent in the UK with children between the ages of 5-10 years, and you are interested in sharing your experiences, BBC Three are currently researching for a new series of short films. The strand is called

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Lysogene Holds First Parent Advisory Board in MPS IIIA

First Advisory Board comprised of parents of children with MPS IIIA, a rare and lethal disease of the central nervous system (CNS) Advisory Board provides valuable insight concerning parents’ expectations of therapy and the urgent need to address the neurological

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MPS in numbers

896

individual and families
supported in 2015

25

rare disease supported

3,364,628

£ given research projects
between 1984-2010