Get Involved

Looking for a quick and easy way to fundraise?

Why not get in contact and request a MPS Society collection box – you can pick up the pennies from your workplace, at your kitchen table or even ask your local shop to put it on their counter.

The MPS Society does not receive any government funding, every penny really does help us to continue our work.

What jumps from a plane at 10,000 – 15,000 feet, falls at 120mph and raises funds for the MPS Society?

You can! Skydiving is an exhilarating and memorable experience, made all the more special by the fact that you can help to support children and adults affected by MPS diseases. If you would like to fall and fundraise for us, get in touch by emailing for more information!

Put it in your diary:

MPS Awareness Day is on 15th May –an international campaign to increase public awareness of these rare genetic diseases. Every year our supporters get involved by Wearing it Blue on this special day, alongside other fundraising events, including bake sales and sponsored walks. In 2015 our supporters and members raised an amazing total of £13,065 and really helped to spread the word about MPS and related diseases!


Fundraising The MPS Society is the only UK charity providing professional support to individuals affected by MPS and related Lysosomal Storage Diseases, their families, carers and professionals. We also fund research into the causes, effects and treatments of these severely life-limiting diseases

How your money helps

How your money helps Since the MPS Society was first founded 35 years ago we have relied heavily on donations from our members and supporters to achieve our key aims: To provide support to those affected Fund vital research Raise

Trusts and Foundations

Trusts and Foundations As the MPS Society continues to improve and expand its services in response to members’ needs, grant-making bodies are playing an increasingly important role in providing the funds to make this happen and giving us an increasingly important


Ideas for fundraising as an individual or in your community If you are looking for some inspirational ideas for fundraising why not download our Guide to Fundraising which has lots of great ways to have fun, and raise money for the MPS


Volunteering We couldn’t function without volunteers and we are always looking for people who want to volunteer and help to provide a better life for individuals and families with MPS and related diseases. Volunteering is not only good for us, it’s

Wills & legacies

Leaving a legacy Why do I need to make a Will? Making a Will ensures that your loved ones are provided for as you intended and that your wishes are respected after you have passed away. If you don’t have

MPS Awareness Day

MPS Awareness Day 2018 This year we marked MPS Awareness Day by paying homage to our MPS heroes. Be it a small act of kindness or a lifetime of support we wanted to celebrate the kindness, passion and ongoing support