Meet the CEO
Bob Stevens has been Group CEO of the MPS Society since 2017. He also holds various other roles, both in the UK and globally, representing the voice of our rare disease community.
Transforming lives through support, research and awareness
We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
Support
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Research
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
Awareness
We invite you to celebrate our awareness events, share your stories and spread the word.
MPS Society events
Hampshire
Paultons Park Family Day
A day trip to Paultons Park with other families living with MPS, Fabry and related conditions.
Waiting list only
Get support
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
Latest from MPS Society
News
Now is the time: global unity for rare disease progress
We urge our global rare disease community to stand with us and demand smarter, faster and more ethical clinical trial pathways that serve the people who need them.
