We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
The MPS Society’s Support and Communities Team is at the core of everything the charity delivers.
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
We invite you to celebrate our awareness events, share your stories and spread the word.
With nearly 25 years at the MPS Society, Sophie Thomas has extensive experience in advocacy, patient services and leadership, alongside a long-standing commitment to the rare disease community. As Interim CEO, she is focused on providing stability and continuity while keeping the community at the heart of the Society’s work.
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
Since recently stepping into the role of Interim CEO, Sophie Thomas reflects on her journey with the MPS Society so far and explains her commitment for her next chapter with the charity.
