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About the diseases

Need information about MPS, Fabry and other lysosomal storage diseases? We have web pages, booklets and animations to help you understand these complex diseases.

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We are...

Transforming the lives of those with MPS, Fabry and related lysosomal diseases

By working to ensure all our community have access to exceptional support and advice, world-class clinical care and effective treatments

Fabry Matters 
Conference

01 Mar 2024, 15:00 – 03 Mar 2024, 12:00

 

Join us in this ground-breaking approach to Fabry collaboration for the benefit of our community.

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Events
  • Christmas at Glenarm Castle
    Christmas at Glenarm Castle
    Sun, 10 Dec
    Glenarm Castle
    10 Dec 2023, 15:30
    Glenarm Castle , 2 Castle Lane, Glenarm, Ballymena, Co. Antrim, BT44 0BQ, N.Ireland
    10 Dec 2023, 15:30
    Glenarm Castle , 2 Castle Lane, Glenarm, Ballymena, Co. Antrim, BT44 0BQ, N.Ireland
    Thank you for your interest in this event. We are sorry but this is fully booked and registration is closed. Christmas feels like it's come early, as we have a little present for you! We have secured limited tickets for one of the most popular Christmas experiences at Glenarm Castle.
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  • Christmas gift giveaway
    Christmas gift giveaway
    Mon, 11 Dec
    Gift giveaway
    11 Dec 2023, 23:50 – 23:55
    Gift giveaway
    11 Dec 2023, 23:50 – 23:55
    Gift giveaway
    As Christmas draws nearer we are conscious that this time of year, though special for many, also brings added pressure. So we are pleased that our charity has again been lucky enough to receive donations of toys and gifts that we are able to share with our community.
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  • Circus Starr, Harrow Arts Centre
    Circus Starr, Harrow Arts Centre
    Wed, 17 Jan
    Pinner
    17 Jan 2024, 16:45
    Pinner, Harrow Arts Center, 171 Uxbridge Rd, Pinner HA5 4EA, UK
    17 Jan 2024, 16:45
    Pinner, Harrow Arts Center, 171 Uxbridge Rd, Pinner HA5 4EA, UK
    Each of the Circus Starr performances are held so that children who have additional learning needs and disabilities can enjoy the magical art of circus and have fun!
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  • Fabry Matters Conference 2024
    Fabry Matters Conference 2024
    Fri, 01 Mar
    Wyboston Lakes Resort
    01 Mar 2024, 15:00 – 03 Mar 2024, 12:00
    Wyboston Lakes Resort, Wyboston Lakes Resort, Great N Rd, Wyboston, Bedford MK44 3AL, UK
    01 Mar 2024, 15:00 – 03 Mar 2024, 12:00
    Wyboston Lakes Resort, Wyboston Lakes Resort, Great N Rd, Wyboston, Bedford MK44 3AL, UK
    Join us in this ground-breaking approach to Fabry collaboration for the benefit of our community. Help us to understand unmet needs in Fabry disease and gather the data that will allow us to work with our life-science industry to co-create effective and innovative solutions.
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