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Thank you for getting involved

Transforming the lives of those affected by MPS, Fabry and related diseases

How can we help?
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Events
  • Online Meet Up with the MPS counselling team
    Online Meet Up with the MPS counselling team
    Mon, 04 Jul
    Zoom
    04 Jul, 19:00 – 20:00 BST
    Zoom
    Come and meet the MPS counselling team from Rareminds for an informal chat online. This is a great opportunity to get to know Stephen and Zubyda by joining this virtual meet up. The session is suitable for parents, carers or other family members impacted by MPS, Fabry and related diseases aged 18+.
    Find out more
  • New online Mindful Self Compassion course for MPS parents or carers
    New online Mindful Self Compassion course for MPS parents or carers
    Wed, 28 Sept
    Zoom
    28 Sept, 10:00 – 30 Nov, 12:45
    Zoom
    Join a NEW online 9 week mindful self compassion course for MPS parents or carers. This course is also suitable for family members impacted by MPS, Fabry and related diseases aged 18 and over. Research shows mindful self compassion increases emotional resilience, wellbeing and happiness.
    Find out more
  • Online Mindfulness course for those with MPS, Fabry or a related disease
    Online Mindfulness course for those with MPS, Fabry or a related disease
    Thu, 29 Sept
    Zoom
    29 Sept, 10:00 – 24 Nov, 12:00
    Zoom
    Join one of our popular online 8 week mindfulness courses for those with MPS, Fabry or a related disease. Learn how to live well with pain, fatigue and other long term symptoms of MPS, Fabry or a related disease.