Transforming the lives of those with MPS, Fabry and related lysosomal diseases

How can we help?
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Events
  • Drayton Manor Park family day out
    Tue, 23 Aug
    Drayton Manor Park
    23 Aug, 10:30 – 16:30
    Drayton Manor Park
    If you are looking for a day out at a theme park with lots of rides and attractions to choose from, then this is for you! Register your interest for a day out at Drayton Manor Theme Park where the whole family will have a fantastic day out. Have fun and meet other MPS families.
  • New online Mindful Self Compassion course for MPS parents or carers
    28 Sept, 10:00 – 30 Nov, 12:45
    Zoom
    Join a NEW online 9 week mindful self compassion course for MPS parents or carers. This course is also suitable for family members impacted by MPS, Fabry and related diseases aged 18 and over. Research shows mindful self compassion increases emotional resilience, wellbeing and happiness.
  • Online Mindfulness course for those with MPS, Fabry or a related disease
    29 Sept, 10:00 – 24 Nov, 12:00
    Zoom
    Join one of our popular online 8 week mindfulness courses for those with MPS, Fabry or a related disease. Learn how to live well with pain, fatigue and other long term symptoms of MPS, Fabry or a related disease.