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Transforming the lives of those affected by MPS, Fabry and related diseases
Visit our dedicated COVID-19 page for information and guidance.
Visit the information and resources page to help you through this time.
Read the latest advice and stories in our COVID-19 related blog posts
Find out about changes to our support services at this time.
We will collect information relevant to the interim decision by NICE to not recommend elosulfase alfa (Vimzim) here as we continue to engage with the NICE process and work with all those involved to make sure our patient community is treated fairly.
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