Our support events have all been postponed or replaced with virtual events.
See below for more information.
Family events 2020
Online mindfulness courses with Claire Garthwaite
An 8 week online mindfulness course:
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On Wednesdays, 10am-12pm, starting on 16 September for those with a long-term condition.
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On Thursdays, 10am-12pm, starting on 17 September for carers or parents.
Focus on Fabry:
Fabry treatment update
22 September 2020
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This webinar for Fabry patients aims to provide information about available interventional studies, who is eligible for them and how to make contact with centres.
Hope and remembrance: a weekend for bereaved families
Online event on 16 October 2020
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Replacing our usual weekend of hope and remembrance, we are holding a virtual event for bereaved families to get together for an organised activity and chat. The event will be run by MPS Society staff for anyone who has lost someone to MPS, Fabry or a related disease.
MPS and COVID: expert advice for patients and families
15 July (recording available)
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We hope this will be a great resource and help for our MPS patients and a chance to ask the experts your questions about COVID-19 and how it may affect you.
Focus on Fabry: living with Fabry and coronavirus
17 June (recording available)
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The impact of coronavirus on Fabry patients with clinical experts.
Webinar on inherited metabolic disease and coronavirus
Recording now available
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We are holding a webinar with the LSD Collaborative to learn more about how coronavirus is affecting members of the inherited metabolic disease community.
Family day to Paultons Park
New date to be confirmed
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Based in The New Forest and home to Peppa Pig World this trip is perfect for families wanting to enjoy a day out in the south of the country.
Family weekend to Alton Towers
New date to be confirmed
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A weekend break to this theme park based in Staffordshire will be lots of fun for all the family with over 40 rides and attractions to enjoy. There's something for everyone.
Family weekend to Disneyland Paris
New date to be confirmed
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Meet some of your favourite Disney characters, rub shoulders with swashbuckling pirates, zoom through time and space and look on in awe at the unforgettable firework and light displays over Sleeping Beauty’s Castle.
Family day to
Lapland UK
New date to be confirmed
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Always a popular event we can't wait to enjoy the wonderment of childhood through this magical world where Father Christmas and his elves come to life in Whitmoor Forest, Ascot.