Our support events have all been postponed or replaced with virtual events.


See below for more information.

Family events 2020

Online mindfulness courses with Claire Garthwaite

An 8 week online mindfulness course:

  • For those with a long-term condition: 8 sessions on Thursdays, 5pm-7pm, starting on 29 April.

  • For carers or parents: 8 sessions on Wednesdays, 10am-12pm starting on 28 April.

Mental health and wellbeing workshops

February and March

A series of free mental health and wellbeing workshops for all UK members and their families to help understand the physical signs of anxiety and learn techniques to manage it when it becomes a burden.

COVID-19 vaccines and Inherited Metabolic Disease: what you need to know

This webinar will bring together an expert panel to address questions and concerns relating to the vaccines, addressing misconceptions and myths, and providing practical advice and information for those with an IMD.

Events for All

More events have been added

After the success of the Events for All between October and December 2020 we are delighted to extend this programme and bring you a new collection of online events this year. Visit the Events for All page to see what exciting things are coming up.

Family day to Paultons Park

New date to be confirmed

Based in The New Forest and home to Peppa Pig World this trip is perfect for families wanting to enjoy a day out in the south of the country.

Family weekend to Alton Towers

New date to be confirmed

A weekend break to this theme park based in Staffordshire will be lots of fun for all the family with over 40 rides and attractions to enjoy. There's something for everyone.


Family weekend to Disneyland Paris

New date to be confirmed

Meet some of your favourite Disney characters, rub shoulders with swashbuckling pirates, zoom through time and space and look on in awe at the unforgettable firework and light displays over Sleeping Beauty’s Castle.

Family day to Lapland UK

New date to be confirmed

Always a popular event we can't wait to enjoy the wonderment of childhood through this magical world where Father Christmas and his elves come to life in Whitmoor Forest, Ascot.