About us

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The MPS Society provides support to families affected by rare genetic conditions. We raise money and awareness of these conditions through fundraising, information, research and support.


Founded in 1982, we are the only registered charity in the UK which focusses on MPS (Mucopolysaccharide), Fabry and related disorders. These disorders cause a range of progressive disabilities. 

Based in Buckinghamshire, we are a registered charity which is governed by an independent board of trustees. Our Group Chief Executive Bob Stevens heads up our Fundraising, Communications, Advocacy and Commercial teams. 

As a small charity, we achieve a huge amount, but we can only do this with the continued support of wonderful people like you.