About us

The MPS Society provides support to families affected by rare genetic conditions. We raise money and awareness of these conditions through fundraising, information, research and support.

Founded in 1982, we are the only registered charity in the UK which focusses on MPS (Mucopolysaccharide), Fabry and related disorders. These disorders cause a range of progressive disabilities. 

Based in Buckinghamshire, we are a registered charity which is governed by an independent board of trustees. Our Group Chief Executive Bob Stevens heads up our Fundraising, Communications, Advocacy and Commercial teams. 

As a small charity, we achieve a huge amount, but we can only do this with the continued support of wonderful people like you.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

0345 389 9901

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2021 Society for Mucopolysaccharide Diseases