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Adults and young people support

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There are many different life limiting diseases

Have you or a family member recently received a new diagnosis? We understand the information you have received

may be new and confusing and it may be difficult to know where to go for further advice and information. Please get in touch with our Support team and you can also visit the sections below for more information.


How we can help


Find out about how the MPS Society can help you.

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Your chance to generate ideas that will help individuals with MPS, Fabry or related diseases in your age group.

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Befriending is a support service that we offer to affected members.

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Throughout the year we hold a number of events for our members to get together to have fun with each other.


Latest dates of regional clinics held by experts across the UK. Read more about affected families.

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Contact the support and advocacy team

Our helpline is open 9-5pm Monday-Friday: 0345 389 9901 or you can email:
Out of hours support line: open 5pm-10pm Monday-Friday and weekends: 07712 653 258 

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