Advocacy support

Providing specialist support and advice

The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases. We offer an individual advocacy support service with skilled and experienced staff who can offer you a wide range of support depending on you or your family’s needs.

The rarity of these conditions means affected individuals and their families often experience difficulties accessing adequate needs-led support and services in their local area. We provide a support network promoting awareness and understanding of the diseases and we work in partnership with you and your family as well as developing professional relationships with local health professionals.

We rely solely on support from public donations, companies and trusts and foundations to offer this service and to be able to support families and individuals. Find out more about how we can help or view our leaflet for more information which is also available to download as a PDF.

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How we can help

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Signposting to support

Our team can look for details of help and support in your area.

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Travelling abroad

From finding the right travel insurance to travelling with disability, we have advice.

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Our Support Officers

Meet our Support and Advocacy Officers and find out more about what they do.

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Advice, information and support for transition from child to adult services.

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Housing and equipment

Help with appropriate housing and home adaptations to meet your needs.

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We can help you get the most appropriate education for your child.

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Register your condition

Become a member of the Society for free to receive information, help and support.

Contact the support and advocacy team

Our helpline is open 9-5pm Monday-Friday: 0345 389 9901 or you can email:
Out of hours support line: open 5pm-10pm Monday-Friday and weekends: 07712 653 258