Advocacy support

Providing specialist support and advice

The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases.

We offer an individual advocacy support service with skilled and experienced staff who can offer you a wide range of support depending on you or your family’s needs.

The rarity of these conditions means affected individuals and their families often experience difficulties accessing adequate needs-led support and services in their local area.  We provide a support network promoting awareness and understanding of the diseases and we work in partnership with you and your family as well as developing professional relationships with local health professionals.

How we can help

Contact the support and advocacy team

Our helpline is open 9-5pm Monday-Friday: 0345 389 9901 or you can email: advocacy@mpssociety.org.uk
Out of hours support line: open 5pm-10pm Monday-Friday and weekends: 07712 653 258 

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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0345 389 9901