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MPS Awareness Week

9-15 May 2022

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Chase the signs  

The theme for this year will be chasing the signs of MPS. There are a plethora of symptoms that someone with MPS can have and we are going to highlight what some of these are. Please get involved and help #ChaseTheSigns 

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How to get involved 

We have a week packed full of fun and raising awareness, from the word go. Start the week off by simply adding a social media graphic to your profile and sharing it with your friends. Please see our planner below for what we're doing during the week. 


Don’t forget International MPS Awareness Day on 15 May! 

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Celebrating 10 years 

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It’s MPS Awareness Week! We have lots in store so come and celebrate with us, whilst raising awareness of MPS!

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Rattle our virtual bucket 


As we can't meet in person this year, we're holding a virtual bucket collection to raise vital funds during MPS Awareness Week. Just £2 from everyone who reads this will transform the lives of families living with MPS and related lysosomal diseases.

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Read 'your stories' 

Find out what life is like living with an MPS or lysosomal disease direct from our MPS community. We have a collection of inspirational stories from those who understand how the disease affects them. 

Share your own experience 

If you are living with an MPS disease or are a close relative of someone who has one of these rare diseases, please share your story with the press to help highlight the symptoms you have to deal with and how it affects your life. 

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Disease booklets 

We have created a few disease booklets which give valuable information for individuals, parents and families. Click on the links below to read. 

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The work we do at the MPS Society would not be possible, without the support of our wonderful community. You can be an MPS Hero by fundraising for us! So, get creative and have fun with it. It’s up to you what you decide to do. You can don an apron and start baking some delicious cupcakes! Or put those trainers on ready to challenge yourself for a running or walking challenge. Or why not get your swimsuit out and swim some lengths of a swimming pool?


Whatever you decide to do, know you will be making a huge contribution to someone else’s life, in such a positive way! 

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Hope, it's in our genes 

Be an MPS Hero 

Your Stories


Read our members stories this MPS Awareness Week.

Buy our blue merchandise

Why not celebrate this year's MPS Awareness Week by purchasing our blue merchandise to help you with your fundraising and awareness raising?

We have some lovely blue products for the whole family, including our blue cotton t-shirts which read Wear it Blue for #MPSAwareness and our brand new super soft navy MPS Society cotton t-shirt.

Don't forget to send in a selfie of you with your blue merchandise!


Please click the button below to visit our online shop.


Contact the Fundraising Team

Call us on: 0345 389 9901 anytime between 9-5pm Monday-Friday or email: