MPS Awareness Week 11-17 May 2020

Help us raise awareness of MPS, Fabry and related diseases from 11-17 May 2020

We want to educate as many people as possible about the signs and symptoms of MPS and related diseases so that more families can get an earlier diagnosis. This will mean better treatment and in some cases it could even save a life.

Receiving an early diagnosis will mean a family will be less isolated, they will know where to turn to for expert advice and will be able to join the rare disease community.

We want to reach as many people as possible with our life saving messages over MPS Awareness Week and we’re asking our members and supporters to get involved in the following ways.

Information will be added to our social media channels nearer to the week. In the meantime please check out ways you can support the week below.  ​ 

MPS Information Stand

Register for an information pack and hold an information stand on any day of MPS Awareness Week, in your local community, school or work place.  Why not combine it with a ‘Wear it Blue’ bake sale and sell cakes decorated in blue icing? You will attract people to your stand to learn more about the charity and also raise funds!

On Friday 15 May 2020 we are asking everyone to ‘Wear it Blue’ in your school, work place or local community. You could simply wear a blue t-shirt or tie or go the whole hog and paint your face or spray paint your hair, this is totally up to you! Why not combine it with a ‘Wear it Blue’ bake sale to raise even more funds!

Bucket collect in your area

We are after volunteers to get involved and raise funds in their local area. This could be bucket collecting outside of a local shopping centre or a local supermarket and we can help you get permission for this.

Contact the Fundraising Team

Call us on: 0345 389 9901 anytime between 9-5pm Monday-Friday or email:

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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0345 389 9901