Bereaved family support

Respectful and compassionate care for a child or young person and their family members at the end of life, ensures their physical, psychological, social needs are met.

 

Ways we can help

If you would like to talk to someone confidentially for as long as you need, you can call our helpline. Our support & advocacy team understand how hard it can be to talk about what you are going through and are patient and empathetic.

 

Create a Remembrance tribute

You can create your own special remembrance website in tribute to your loved one, where you can share memories, thoughts and stories with family and friends as well as light candles, add music, photos and videos. By creating a Remembrance tribute you can also collect donations in your loved one's name, organise events and celebrate anniversaries.

GriefChat

Created by bereavement experts, GriefChat connects you directly to a specially trained bereavement counsellor by clicking on the GriefChat box below.

GriefChat counsellors are experienced in supporting bereaved people and will listen to your story, explore how your grief is affecting you and help you to find any additional support you might need.

 

GriefChat is a completely free service and is available Monday-Friday, 9am-9pm. You can email GriefChat outside of these hours or contact the MPS Society for support.

Contact us

For help with setting up a remembrance tribute and to discuss any questions you may have, please contact the support and advocacy team on 0345 389 9901 or via email advocacy@mpssociety.org.uk. Out of hours support line open 5pm-10pm Monday-Friday and weekends: 07712 653 258 

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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0345 389 9901