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The MPS Society takes its responsibilities in relation to data protection very seriously. Details on this form will be stored, recorded and shared in accordance with GDPR. Further information can be found in our Data Protection and Privacy Policy (

The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases. We offer an individual advocacy support service with skilled and experienced staff who can offer you a wide range of support depending on you or your family’s needs.

The rarity of these conditions means affected individuals and their families often experience difficulties accessing adequate needs-led support and services in their local area.  We provide a support network promoting awareness and understanding of the diseases and we work in partnership with you and your family as well as developing professional relationships with local health professionals.

For general enquiries contact MPS Society Head Office by phone: 0345 389 9901 or email:


Our office opening hours are Monday to Friday, 9am-5pm.


If you are currently supported by the MPS Society and are unable to get hold of your support officer, please call: 0345 389 9901 

Our out of hours support line is open Monday to Friday 5pm-10pm, weekends and bank holidays 9am-5pm: 07712 653258

For any media enquiries, please contact the Communications team.

How are we doing?

Please take a few minutes to give us some feedback on support you received so we can continue to improve our services in the future.

How do you want to hear from us?

We want to contact you in a way that suits you. Please use this form to tell us your preferences. You can change your mind at any time or choose to unsubscribe from all communication with us if you wish. If you have any questions about this form or about how we contact you please email or phone 0345 389 9901. Please note that we need one form completed for every person who wishes to have contact with the MPS Society.

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