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The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases. We offer an individual advocacy support service with skilled and experienced staff who can offer you a wide range of support depending on you or your family’s needs.

The rarity of these conditions means affected individuals and their families often experience difficulties accessing adequate needs-led support and services in their local area.  We provide a support network promoting awareness and understanding of the diseases and we work in partnership with you and your family as well as developing professional relationships with local health professionals.

Get in touch

  • For general enquiries contact MPS Society Head Office by phone: 0345 389 9901 or email: mps@mpssociety.org.uk. Our office opening hours are Monday to Friday, 9am-5pm.

  • If you are currently supported by the MPS Society and are unable to get hold of your support officer, please call: 0345 389 9901 

  • ​Our out of hours support line is open Monday to Friday 5pm-10pm, weekends and bank holidays 9am-5pm: 07712 653258

  • ​For any media enquiries, please contact the Communications team.

Christmas opening times

Our offices will be closed between Christmas and New Year.

For non-urgent support, please email the Support Team or leave a message on the answerphone and we will get back to you when we return to the office in the new year.

Our Support and Communities Team are offering a limited out-of-hours support service from 29 to 31 December, between 9am and 5pm.

During these hours, our team will be available to provide urgent signposting to relevant services. Please note that this service is not an emergency line and we are unable to provide medical advice or urgent crisis support.

If you are calling outside of these hours, or if you need immediate medical or mental health support, please contact your specialist centre, local emergency services or a relevant urgent support organisation.

If you require urgent signposting support, please call the out-of-hours support service on 07712 653258.

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