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The MPS Society is the only UK charity supporting individuals and families affected by MPS and related diseases. We offer an individual advocacy support service with skilled and experienced staff who can offer you a wide range of support depending on you or your family’s needs.
The rarity of these conditions means affected individuals and their families often experience difficulties accessing adequate needs-led support and services in their local area. We provide a support network promoting awareness and understanding of the diseases and we work in partnership with you and your family as well as developing professional relationships with local health professionals.
If you are currently supported by the MPS Society and are unable to get hold of your support officer please call: 0345 389 9901
Our out of hours support line is open Monday to Friday 7am-9am and 5pm-10pm and weekends 7am-10pm: 07712 653258
For any media enquiries, please contact the Communications team.
How are we doing?
Please take a few minutes to give us some feedback on support you received so we can continue to improve our services in the future.
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