MPS Society

How your money helps

 

£6 could pay for a newly diagnosed family to receive a disease-specific information booklet

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£25 could pay for a support and advocacy officer to present on MPS, Fabry and related diseases in a school so that students, teachers are informed on how best to support a child with a rare disease

 

£34 could fund a support and advocacy officer for two hours so they can support a child and their family when they need someone to answer their questions and provide a listening ear

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£85 could pay for a Young Persons Advisory panel session, attended by young people affected by MPS, Fabry or a related disease, helping to shape the future of our dedicated young person support services

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£104 could pay a support and advocacy officers travel cost so they can visit an affected family providing vital practical and emotional support
 

£110 could pay for a support and advocacy officer to attend a specialist training course so they can best support our families

 

£125 could pay for funeral donations and flowers to be sent to a newly bereaved family offering support in times of grief

 

£195 will support one family affected by an MPS or related disease in the UK each year.

 

£416 could pay for a support and advocacy officer to visit four affected families providing vital practical and emotional support

 

£1,000 could support 5 families with tailored support, advocacy and information. Your support could help families with an MPS or related diagnosis to live the lives they want.
 

£2,000 could support 10 families with tailored support, advocacy and information. Your support could help families with an MPS or related diagnosis to live the lives they want.

 

£5,000 could support 25 families with tailored support, advocacy and information. Your support could help families with an MPS or related diagnosis to live the lives they want.