Fabry Awareness Month

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April is Fabry Awareness Month

This year for Fabry Awareness Month our aim is to highlight what life is like living with Fabry disease and delve into a world that can often be hidden from society. So let's open up and start a conversation about Fabry disease. 

How to get involved

Read 'Your Stories' - Find out what life with Fabry disease is like direct from our Fabry community. We have a collection of stories from people living with Fabry disease as well as professionals who see Fabry disease every day. Gain a better understanding of how this disease affects those who live with it.

Share your own experience - If you are living with Fabry disease, share your story with our community to help highlight the symptoms you have to deal with and how it affects your life.

Get social - Follow us on Facebook, Twitter and Instagram and share our #FabryAwareness posts. Let's get everyone talking about Fabry disease.

Donate - Help us support those living with Fabry disease by making a donation to the charity. Our members face so many challenges because of their symptoms, we are here to make life as easy as possible so they can live life to their full potential.

Useful links

About Fabry disease

Advocacy support

Get involved

Contact us


Our helpline is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours support line open 5pm-10pm Monday-Friday and weekends:

07712 653 258 

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Fabry Awareness Month stories