Fabry Awareness Month

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Throughout this month, we are celebrating Fabry Awareness Month and exploring the topic "Could it be Fabry?"

We have got lots of interesting content for you coming up this month.

One of our supporters, Loretta MacInnes, will be guest blogging weekly about her journey with Fabry and the signs to look out for. We will feature a blog on this page each week.

We will also be posting on our social media channels and sharing Loretta's tweets.

To get involved, look out on our social media channels and share, re-tweet, comment or tell us your story using #CouldItBeFabry

Use the form below, send us your story and we will share it.

Let’s make this Fabry Awareness Month the best one yet!

Useful links

About Fabry disease

Advocacy support

Get involved

Contact us


Our helpline is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours support line open 5pm-10pm Monday-Friday and weekends:

07712 653 258 

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