MPS Society

Claire O'Meara - Claire is one of our guest bloggers who talks candidly about her experiences of being diagnosed with Fabry and her journey of living with a rare disease. Claire recalls how she first felt when she first started getting symptoms saying, "32, young fun living life and boom hit by what I can only describe as a tidal wave of fatigue and body pain that came from nowhere.."

Jack Harris - Jack was diagnosed when he was 11 and was the youngest child to start treatment at about 18 months.

Jack says, "As I had always had treatment and all my siblings and mum had had treatment too I just thought it was normal."

Find out more about Jack's amazing story. 

Derralynn Hughes - Derralynn is one of our new trustees. She is also a Professor of Experimental Haematology at University College London, Clinical Director of Research and Innovation at the Royal Free London NHS Foundation Trust, and Co-Clinical Director of the NCL Cancer Alliance. Derralynn is also Chair of the European Working Group on Gaucher Disease. 

Donna Parker - Donna is our Fabry Support and Advocacy Officer at the MPS Society. Her background has mainly revolved around the healthcare sector, and she spent many years working in retail banking and customer service.

Prior to working for the MPS Society Donna worked as a Registered Nurse.