Fabry awareness month

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About Fabry disease

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Contact us

 

Our helpline is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours support line open 5pm-10pm Monday-Friday and weekends:

07712 653 258 

This April we welcome Fabry awareness month 2020 in which we hope to bring increased awareness of Fabry disease to healthcare professionals and the wider UK population, in the hope that together we can help contribute to increased education of the condition and treatments available; which will hopefully result in a greater understanding of the impact of Fabry disease and earlier diagnosis and management for patients. 

Takeda and the MPS Society have created some short films to raise awareness of Fabry disease during April, to show how Fabry disease affects people’s lives both before diagnosis and after, with appropriate management and treatment.

 

We have asked some of our Fabry community to get involved by sharing our hashtag #FabryAwarenessMonth and a selfie with a quote completing this sentence:

Living with Fabry is like...

Contact the Fundraising Team

Call us on: 0345 389 9901 anytime between 9-5pm Monday-Friday or email: fundraising@mpssociety.org.uk
 

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

Images and stories may not be reproduced without express written permission. 

© 2019 Society for Mucopolysaccharide Diseases

MPS Society

MPS House, Repton Place

White Lion Road, Amersham

Buckinghamshire, HP7 9LP

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