See all the latest news, blogs and updates from the medical sector.
News
Generation Study update: implications for our expanded UK newborn screening panel work
We wanted to share an important update with our community about the Generation Study and what the completion of this research programme means for the future of newborn screening.
29/07/2026
Blog
PPPN: working together
The PPPN is working together to improve care and outcomes for people living with Lysosomal Storage Disorders
29/07/2026
Blog
Our response to the Timms Review of Personal Independence Payment (PIP)
The publication of the Timms Review marks an important moment in the future of Personal Independence Payment (PIP), with the review concluding that the current system is not fit for purpose.
29/07/2026
Blog
Ambassador stories from the International MPS Symposium
Alison and Bethanie from the Patient Services Team were excited to be joined by our ambassadors Sam, Jacob and Helen in Florence. Together they reflect on their experience and share some core messages from the presentations they attended.
25/06/2026
Blog
Reflections from Florence: connection, hope and a global community
As an ambassador for the MPS Society, Helen recently attended the International MPS Conference in Florence. Focussed on representing our community to the best of her abilities, Helen reflects on all the highlights of her trip.
25/06/2026
Blog
Together we can transform lives
Check out our Awareness Week special, highlighting all our amazing supporters wearing it blue and raising funds for the MPS Society.
17/06/2026
Blog
A special evening with the MPS Society
In celebration of MPS Awareness Week and Fabry Awareness Month, we hosted a special evening in London focused on the future for those living with MPS, Fabry and related conditions.
11/06/2026
Story
Imogen's work experience and reflections
Read all about Imogen's recent work experience at MPS House and why she thinks this was a special opportunity.
05/06/2026
Blog
The power of volunteering
Ria, Ahmed, Helen and Keshini share their motivations for volunteering with the MPS Society.
02/06/2026
News
MHRA consultation on rare disease therapies
The UK Medicines and Healthcare products Regulatory Agency (MHRA) has launched a public consultation on proposed new guidance for rare disease therapies.
