• Vimeo - White Circle
  • LinkedIn - White Circle
  • Twitter - White Circle
  • Facebook - White Circle

> Go back to Families

DONATE NOW

> Go back to Parent Support

  • Vimeo - White Circle
  • LinkedIn - White Circle
  • Twitter - White Circle
  • Facebook - White Circle
  • Vimeo - White Circle
  • LinkedIn - White Circle
  • Twitter - White Circle
  • Facebook - White Circle

> Go back to Parent Support

About Us
MPS-single-hex_blue.png
DONATE
SHOP
JOIN

MPS Society

Transforming lives through

support, research and awareness

  • About us

    • Who we are
    • Our promise
    • Our friends
    • Our vision
    • News
    • What's new
    • Work with us
  • Support we offer

    • Book an Advocacy clinic
    • Support during COVID
    • For parents
    • For adults and young people
    • For siblings
    • Bereavement and palliative care
    • Mental health and wellbeing
    • Events and clinics
    • Our resources
  • About the diseases

    • MPS diseases
    • Fabry disease
    • Related diseases
    • Treatments and research
    • Access to treatments
    • Family stories
  • Get involved

    • Fundraise
    • MPS Society's 40th anniversary
    • MPS Awareness Week
    • Fundraising events
    • Community
    • Support us at work
    • Fundraising resources
    • Volunteer with us
    • Leaving a gift in your will
    • In memory
    • How your money helps
  • More

    Use tab to navigate through the menu items.

    Family stories

    Meet some of the children, adults and families that we support and read about their experiences of living with MPS, Fabry and related diseases.

    ella.jpg

    Miya (MPS I)

    Oliver and Sam (MPS II)

    Ella (MPS III) 

    joandphil.jpg

    Read more

    Oli and Sam-5978.jpg
    IMG_1387 copy miya_edited.jpg
    olover.jpg
    naomi.jpg

    Read more

    Read more

    Joanne (MPS IV)

    Read more

    Oliver (MPS VI)

    Read more

    Naomi (Fabry Disease)

    Read more

    MPS Society

    Site links

    We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal diseases in the UK.

    Our policies

    About the charity

    Our promise

    Donate
    Resources

    Our accounts

    DONATE NOW
    OUR SHOP

    Stay updated

    CONTACT US

    Sign up for our monthly newsletter below

    Thank you for signing up to our monthly newsletter

    MPS Society, MPS House,

    Repton Place, White Lion Road,

    Amersham, Buckinghamshire,

    HP7 9LP, United Kingdom

    mps@mpssociety.org.uk

    fr logo.png
    • Facebook - White Circle
    • Twitter - White Circle
    • Instagram
    • LinkedIn

    Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.
    Images and stories may not be reproduced without express written permission.
    © 2022 Society for Mucopolysaccharide Diseases

    0345 389 9901