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About Us
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MPS Society

Transforming lives through

support, research and awareness

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  • About us

    • Who we are
    • Our promise
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  • Support we offer

    • Support during COVID
    • For parents
    • For adults and young people
    • For siblings
    • Bereavement and palliative care
    • Mental health and wellbeing
    • Events and clinics
    • Our resources

  • About the diseases

    • MPS diseases
    • Fabry disease
    • Related diseases
    • Treatments and research
    • Family stories

  • Get involved

    • Fundraise
    • MPS Awareness Week
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    • Support us at work
    • Fundraising resources
    • Volunteer with us
    • Leaving a gift in your will
    • In memory
    • How your money helps

  • More

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    Family stories

    Meet some of the children, adults and families that we support and read about their experiences of living with MPS, Fabry and related diseases.

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    Miya (MPS I)

    Oliver and Sam (MPS II)

    Ella (MPS III) 

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    Read more

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    Joanne (MPS IV)

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    Oliver (MPS VI)

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    Naomi (Fabry Disease)

    Read more

    MPS Society

    Site links

    We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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    CONTACT US

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    MPS Society, MPS House,

    Repton Place, White Lion Road,

    Amersham, Buckinghamshire,

    HP7 9LP, United Kingdom

    mps@mpssociety.org.uk

    0345 389 9901

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    Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

    Images and stories may not be reproduced without express written permission.

    © 2021 Society for Mucopolysaccharide Diseases