Our trustees

The foundations of a good charity are always built upon good governance. Our trustees are from a diverse range of backgrounds including family members of those with one of our conditions, clinicians, scientists, and business people. Our trustees receive regular training and play an active role at events and in setting our new strategy.

Judith Evans – Vice Chair


Judith was born and brought up in East Anglia, but moved to the west of Scotland with her husband Graham in 1981. They have enjoyed a long association with the MPS Society since their daughter Joanne was diagnosed with MPS IV Morquio in about 1989. Judith has previously served as a Trustee for 16 years, including as honorary treasurer for many years, and is now returning to the Board as vice-chair. In her spare time, Judith enjoys ballet, swimming and choral singing.





Dr Fiona Stewart


Dr Fiona Stewart is a recently retired consultant in Clinical Genetics based in Belfast. She has been involved in the care of adults and children with MPS and related disorders for over 20 years. She has been an investigator in a number of ERT trials. she was very involved in the establishment of genetic testing in the UK and chaired the UKGTN genetic testing and evaluation working group for over 10 years. In 2013 she was awarded the MBE for services to genetic medicine in the UK. In 2017 she was diagnosed with breast cancer. Following surgery, chemotherapy and radiotherapy she made a good recovery and is enjoying life with her husband Sam. She now has time to visit her son in England and her daughter who has moved to Australia. She still has a keen interest in MPS and related disorders.





Dr Fiona Stewart


Dr Fiona Stewart is a recently retired consultant in Clinical Genetics based in Belfast. She has been involved in the care of adults and children with MPS and related disorders for over 20 years. She has been an investigator in a number of ERT trials. she was very involved in the establishment of genetic testing in the UK and chaired the UKGTN genetic testing and evaluation working group for over 10 years. In 2013 she was awarded the MBE for services to genetic medicine in the UK. In 2017 she was diagnosed with breast cancer. Following surgery, chemotherapy and radiotherapy she made a good recovery and is enjoying life with her husband Sam. She now has time to visit her son in England and her daughter who has moved to Australia. She still has a keen interest in MPS and related disorders.





Judith Evans – Vice Chair


Judith was born and brought up in East Anglia, but moved to the west of Scotland with her husband Graham in 1981. They have enjoyed a long association with the MPS Society since their daughter Joanne was diagnosed with MPS IV Morquio in about 1989. Judith has previously served as a Trustee for 16 years, including as honorary treasurer for many years, and is now returning to the Board as vice-chair. In her spare time, Judith enjoys ballet, swimming and choral singing.





Dr Fiona Stewart


Dr Fiona Stewart is a recently retired consultant in Clinical Genetics based in Belfast. She has been involved in the care of adults and children with MPS and related disorders for over 20 years. She has been an investigator in a number of ERT trials. she was very involved in the establishment of genetic testing in the UK and chaired the UKGTN genetic testing and evaluation working group for over 10 years. In 2013 she was awarded the MBE for services to genetic medicine in the UK. In 2017 she was diagnosed with breast cancer. Following surgery, chemotherapy and radiotherapy she made a good recovery and is enjoying life with her husband Sam. She now has time to visit her son in England and her daughter who has moved to Australia. She still has a keen interest in MPS and related disorders.





Dr Fiona Stewart


Dr Fiona Stewart is a recently retired consultant in Clinical Genetics based in Belfast. She has been involved in the care of adults and children with MPS and related disorders for over 20 years. She has been an investigator in a number of ERT trials. she was very involved in the establishment of genetic testing in the UK and chaired the UKGTN genetic testing and evaluation working group for over 10 years. In 2013 she was awarded the MBE for services to genetic medicine in the UK. In 2017 she was diagnosed with breast cancer. Following surgery, chemotherapy and radiotherapy she made a good recovery and is enjoying life with her husband Sam. She now has time to visit her son in England and her daughter who has moved to Australia. She still has a keen interest in MPS and related disorders.





Dr Fiona Stewart


Dr Fiona Stewart is a recently retired consultant in Clinical Genetics based in Belfast. She has been involved in the care of adults and children with MPS and related disorders for over 20 years. She has been an investigator in a number of ERT trials. she was very involved in the establishment of genetic testing in the UK and chaired the UKGTN genetic testing and evaluation working group for over 10 years. In 2013 she was awarded the MBE for services to genetic medicine in the UK. In 2017 she was diagnosed with breast cancer. Following surgery, chemotherapy and radiotherapy she made a good recovery and is enjoying life with her husband Sam. She now has time to visit her son in England and her daughter who has moved to Australia. She still has a keen interest in MPS and related disorders.





Judith Evans – Vice Chair


Judith was born and brought up in East Anglia, but moved to the west of Scotland with her husband Graham in 1981. They have enjoyed a long association with the MPS Society since their daughter Joanne was diagnosed with MPS IV Morquio in about 1989. Judith has previously served as a Trustee for 16 years, including as honorary treasurer for many years, and is now returning to the Board as vice-chair. In her spare time, Judith enjoys ballet, swimming and choral singing.





Katy Brown


Katy became a trustee in 2020 but has been involved with the Society since her eldest son, Sam, was diagnosed with MPS IVA Morquio in 2010. She and Sam were both heavily involved in the successful campaign for the NHS to fund Vimizim in 2015. She lives in Yorkshire with her husband Simon, Sam, and his younger brother Alex. Katy is a Programme Manager working for the Co-op, with a wealth of transformation experience. Outside of working she enjoys running, travelling and organising fundraising events.





Dr Fiona Stewart


Dr Fiona Stewart is a recently retired consultant in Clinical Genetics based in Belfast. She has been involved in the care of adults and children with MPS and related disorders for over 20 years. She has been an investigator in a number of ERT trials. she was very involved in the establishment of genetic testing in the UK and chaired the UKGTN genetic testing and evaluation working group for over 10 years. In 2013 she was awarded the MBE for services to genetic medicine in the UK. In 2017 she was diagnosed with breast cancer. Following surgery, chemotherapy and radiotherapy she made a good recovery and is enjoying life with her husband Sam. She now has time to visit her son in England and her daughter who has moved to Australia. She still has a keen interest in MPS and related disorders.





Katy Brown


Katy became a trustee in 2020 but has been involved with the Society since her eldest son, Sam, was diagnosed with MPS IVA Morquio in 2010. She and Sam were both heavily involved in the successful campaign for the NHS to fund Vimizim in 2015. She lives in Yorkshire with her husband Simon, Sam, and his younger brother Alex. Katy is a Programme Manager working for the Co-op, with a wealth of transformation experience. Outside of working she enjoys running, travelling and organising fundraising events.





Our senior leadership team

The senior leadership team is made up of representatives from each department who meet regularly to drive forward the mission of the MPS Society on a day to day basis. 

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Bob Stevens_web.jpg

Bob Stevens,

Group Chief Executive

Anna Featherstone, Head of Fundraising & Communications

Toni Ellerton, 

Executive Assistant

Sophie Thomas,

Head of Patient Services

John Illankovan, 

Head of Group Finance

Tom Kenny,

CEO for MPS Commercial

Steve Cotterell,

Support and Advocacy Lead