Our policies

The MPS Society adopts best practice across all aspects of its role and activities and is constantly seeking initiatives which add value to its members, supporters and the wider MPS community. The MPS Society is committed to investing in training and development of our employees and treating health and safety a priority. In achieving this the Board of Trustees have developed a wide range of policies that protects our members and their families, volunteers, supporters, employees and the MPS Society as a whole.


Our cookie and privacy policy

We want everyone who supports us, or who comes to us for support, to feel confident and comfortable with how any personal information you share with us will be looked after or used. The privacy policy sets out how we collect, use and store your personal information (this means any information that identifies or could identify you). View our pdf privacy and cookie policy.

Our GDPR policy

The MPS Society is committed to ensuring that your privacy, and personal data, is protected. Our GDPR policy is available on request. You can withdraw your consent to be contacted at any time by completing our unsubscribe to certain or all services on our 'Contact us' page, your preferences section or write, email or call us. 

Our safeguarding policy

The MPS Society recognises the importance of its support services to families, children, young people and adults and its particular responsibilities to safeguard and promote the welfare of those who are vulnerable or at risk. The welfare of a child, young person or adult at risk is paramount whatever their age, culture, disability, gender, language, racial origin, religion or sexual identity and they have the right to be protected from abuse.


The MPS Society recognises that some children, young people and adults at risk are additionally vulnerable to abuse due to their disability, level of dependence, communication needs or other issues. The MPS Society will always take extra care to look out for signs of abuse in this group of individuals and ensure that their needs are not neglected due to difficulties they may have in communicating signs of abuse. All suspicions and allegations of abuse will be taken seriously and responded to immediately and the appropriate action taken. Our safeguarding policy is available on request.


Copies of our vulnerable supporter policy, anti-bribery and others are available on request.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

0345 389 9901

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2021 Society for Mucopolysaccharide Diseases