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MPS I Hurler-Scheie disease - information for individuals, parents and families

Updated: Feb 6

We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have created some disease booklets for you to learn more about the diseases and how we can help you to live well with them.

MPS I is a rare and complex disease, each type with its own range of physical and neurological symptoms and different degrees of severity that changes from one person to the next and across different stages of life.

Click to read more about MPS I Hurler-Scheie:

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