Defining the MPS Society vision

    Updated: Feb 12

    Findings from our stakeholder survey

    In the ever changing rare disease landscape, the MPS Society needs to ensure it continues to serve the best interests of our patient community. The need to re-evaluate our purpose and priorities gave rise to the MPS Society Vision Project to develop our strategies and plans for the coming years. To inform this project, we commissioned our research team in MPS Commercial (now RD-RP) to gather the views of our stakeholders.

    We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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    Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

    Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

    MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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