Defining the MPS Society vision

Updated: Feb 12, 2020

Findings from our stakeholder survey


In the ever changing rare disease landscape, the MPS Society needs to ensure it continues to serve the best interests of our patient community. The need to re-evaluate our purpose and priorities gave rise to the MPS Society Vision Project to develop our strategies and plans for the coming years. To inform this project, we commissioned our research team in MPS Commercial (now RD-RP) to gather the views of our stakeholders.

Cover image of the findings from our stakeholder survey