Defining the MPS Society vision

Updated: Feb 12

Findings from our stakeholder survey


In the ever changing rare disease landscape, the MPS Society needs to ensure it continues to serve the best interests of our patient community. The need to re-evaluate our purpose and priorities gave rise to the MPS Society Vision Project to develop our strategies and plans for the coming years. To inform this project, we commissioned our research team in MPS Commercial (now RD-RP) to gather the views of our stakeholders.



We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society

MPS House, Repton Place

White Lion Road, Amersham

Buckinghamshire, HP7 9LP

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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