Our vision

The future for the MPS Society is one where we put our members at the centre of everything we do, in line with our vision for all people affected to live the lives they want.


Our plans for 2019-2021 are to:


  • Ensure affected people know where to turn to for specialist knowledge, support and advocacy

  • Provide the services that beneficiaries tell us they need in a way that suits them

  • Take an active role in research

  • Ensure families receive the fastest possible diagnosis

  • Champion new and existing treatments and therapies

  • Make it happen by investing in our future

The 2019-2021 strategy is the beginning of a new chapter in the development of the MPS Society. Please read our three year strategy below or download the PDF. Read the results of the Vision survey which we used to shape the strategy.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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MPS Society, MPS House,

Repton Place, White Lion Road,

Amersham, Buckinghamshire,

HP7 9LP, United Kingdom

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0345 389 9901

Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882.

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© 2021 Society for Mucopolysaccharide Diseases