MPS Society

This webinar for Fabry patients and their families provides information about available interventional studies, who is eligible for them.

In this short clip Dr Tom Kenny, CEO of Rare Disease Research Partners (RDRP) urges you to take part in the highly important LSD Collabor...

Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.

If you are affected by an ultra-rare disease we need your help to make support change and improve your care and services.

MPS and COVID webinar for patients and their families.

Bob Stevens, Chief Executive of the MPS Society and father to two teenage boys with MPS II Hunter, shares his tips for surviving lockdown.

A video lecture on what happens from a laboratory point of view when it comes to making a diagnosis for MPS diseases.

First Fabry patient webinar focussing on Fabry and coronavirus is today at 4pm.

The second webinar in this series focuses on how those affected by inherited metabolic diseases may be impacted by the coronavirus outbreak.

Gordon Harvey, MPS Society Trustee and father, shares his top tips on homeschooling.