Fabry International Network Newsletter | December 2020

The latest newsletter from the Fabry International Network (FIN) is now available.


A word from the President


Dear All


The last newsletter of 2020!


In this edition we share a lot of information which I am sure you will find an interesting read. We would also like to draw your attention to the save the date for our virtual FIN Expert meeting in 2021. We look forward to seeing you all at the meeting.


As we approach the festive season, I would like to pay tribute to everyone who works or volunteers to help others. This year the spirit of the season will likely mean different things to different people. Everyone’s 2020 has been incredibly difficult and disruptive. Although we might not be able to spend this time of the year with all the people we love, connecting is now more important than ever. Reach out, call, Zoom, send a card and be thankful for what is and what is yet to come.


On behalf of the FIN Board I would like to thank everyone for all your support and interaction, you are all truly amazing!


Stay safe and healthy!

Lut, FIN president


Contents of this issue


  • FIN Expert Meeting 2021—Save the date

  • FIN Young Adults — Mental Health Tips

  • New FIN members

  • “I Hand the Pen To” - Interview with Fabry Leaders around the world

  • Supporting our immune system - Dr Kanwal

  • FOS report 2019

  • News from Eurordis & RDI

  • News from Avrobio

  • Sleep Hygiene for Fabry Disease - Fabry Disease News


Download the newsletter >>

More information about the work that FIN is available from their website.

Visit FIN website >>


Find help and support for anyone living with Fabry disease at the MPS Society.

Support for Fabry patients >>

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