MPS lockdown diaries

Every day, our MPS families live with often challenging situations, and this year has been no different. The COVID-19 pandemic has affected everyone across the UK, and our members have been in touch with their experiences of living in lockdown with MPS, Fabry and related diseases. Keeping a positive outlook is key in times like these, so we’re delighted to share some wonderful poetry, personal stories, birthday celebrations and more from our unique pandemic perspective. Sharing stories is a vital part of keeping our community vibrant and connecting MPS families together, so get in touch to tell us about your lockdown birthdays, fundraisers, treatment days, new hobbies, or anything else you’d like to share. We love hearing from you.


Pandemic poetry


Manahil penned this heartfelt poem as a tribute to the hard work of the NHS throughout the pandemic. Beautiful work, Manihil!


Sacrifice By Manahil Imran


They come in many sizes and shapes,

But not all heroes wear capes.

They help our society whilst it shakes,

But to see their families is what their heart aches.


They are on the frontline, like soldiers,

Even if their workload is as heavy as boulders.

Yet they do not moan or complain,