top of page

Register your condition

20190309_160018 (1).jpg

If you or your child is affected by one of the 27 rare diseases we support, you can register to become a member of the MPS Society.


As a member, you will be able to receive specialist advice, support and up to date information about your disease.


If you or one of your family members have been recently diagnosed, then we understand that this can be a difficult time for you. We are here to support you so please complete this form to tell us more about you or your family member so we can get in touch to offer help and support.

Useful links

For advocacy

For sibling support

For about the disease

Contact us


Our helpline is open 9-5pm

Monday-Friday: 0345 389 9901

Out of hours support line: open 5pm-10pm Monday-Friday and weekends:

07712 653 258 

Screen Shot 2019-06-18 at 09.36.43.png
bottom of page