Individual UK patient registration form

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Consent form

If you require the advocacy support service to liaise with other services or act on your behalf please contact us on 0345 389 9901

Privacy statement

We will always store your personal details securely. We will use them to provide the service(s) that you have requested and communicate with you in the way(s) you have agreed to. Your details may also be used for analysis purposes, to help us provide the best possible service. We will not pass on your details to anyone else and we will only share them if required to do so by law. Read our full data protection, GDPR and privacy policies here or alternatively you can request a copy by contacting the office.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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Registered Charity No.1143472 & SCO41012. Registered Company No. 7726882  

Images and stories may not be reproduced without express written permission. © 2019 Society for Mucopolysaccharide Diseases

MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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0345 389 9901