You might recognise Claire from our national conferences where she has facilitated sessions on mindfulness and presented on the emotional journey of coming to terms with an MPS diagnosis. Using her experience as a parent of children with MPS, a doctor and a mindfulness teacher, Claire has produced a short video giving tips and advice for looking after yourself during difficult times.
01. It's ok to have strong feelings
These are very challenging times and you may have health and financial worries, worries about operations being cancelled, exams missed, managing a child with behavioural problems, you might worry about missed treatments, homeschooling critical hospital appointments, having a carer in the home, juggling work with home schooling and how to entertain children, keeping family life going, as well as worries about how life is going to be after this crisis. If you can take a moment to stop and recognise what you are feeling you will have a much better idea of how to help yourself. Take one moment at a time.
02. What about worries?
You might well be feeling anxious about you or someone you really care about catching coronavirus. Try to:
limit the time you spend listening to news
particularly avoiding the news in the evening before going to bed so you don't disrupt your sleep
find time in the day to do something relaxing and enjoyable for you
visit the charity Mind for more tips for helping with anxiety.
03. Be kind to yourself
If you are a carer it's vital to look after yourself so that you can take care of others. If you do reach your limit, ask yourself what can I do to help look after me?
Take a break before you need one.
Don't put too much pressure on yourself to have everything in order at home.
Just do your best.