Latest information for clinically extremely vulnerable adults and children

Both the British Inherited Metabolic Disease Group (BIMDG) and the Royal College of Paediatrics and Child Health (RCPCH) have issued guidance on how clinically extremely vulnerable (CEV) adults and children will be assessed during this current lockdown.


We have gathered together some information and guidance that you may find helpful.


For adults


BIMDG | Guidance for identifying individuals with inherited metabolic disease (IMD) vulnerable to COVID-19 complications (published November 2020)

View the PDF >>


BIMDG | News page for IMD and Coronavirus (COVID-19)

Visit the website >>


BIMDG | COVID-19 resources

Visit the website >>

For children


RCPCH | COVID-19 - guidance on clinically extremely vulnerable children and young people

Read the full report >>


RCPCH | Summary of key current evidence regarding COVID-19 in children and young people

Read the evidence summary >>


For everyone


Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19

Visit the Government website >>

We are aware that some individuals have recently received communications from the Department of Health already. Any individual patient who feels they have been put on the clinically extremely vulnerable list in error, or who feels they may have been omitted from this list in error should contact their treating metabolic centre directly for advice.

The MPS Society is actively engaging with clinical teams on this matter, to ensure clear communications for our patient communities. Please look out for updates on our social media channels or contact our Support and Advocacy Team if you need to speak to us.

We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry or a related disease in the UK.

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